Sunday, April 6, 2008

DVPMP and Me


So today I want to ask all of you a question. Is there a conflict of interests if I participate in the Delaware Valley Personalized Medicine Project and sit on its Informed Cohort Board? I have been giving this some thought lately....

This is a wonderful project with some very secure privacy measures akin to Swiss Banking. Unlike other Direct To Consumer projects this is Funded. Unlike others we will be evaluating on a rolling basis and releasing data that is reviewed by our board. I would love to participate.

So I ask.....would it be a conflict if I reviewed the data AND had submitted a sample?

If I paid for the 23andME or deCodeMe would I have reviewed my OWN data. You are damned right I would. So what makes this different? I would be reviewing and commenting on others' data too. The important point is that we only release medically actionable information after we have discussed it. So in essence I would be blinded to my data until after we had reviewed the studies.


So........


I ask....."What do you think?"


2 comments:

Andrew said...

Unless you can articulate specifically what the conflict would be, then perhaps the only conflict is the feeling of conflict itself!

elles1 said...

The real question is whether you will be compensated for sitting on the board. If so you would be conflicted from commenting on other gene companies like Navigenics 23andMe and deCode. For me personally even if you weren't compensated in any way I would feel you might be biased.