Jordana and the "Team" at Access DNA have a form which evaluated my extensive family history and have come up with a list of genetic tests I should be tested for......little did she know that this was a list for the Sherpa and the she as a Board Certified Genetic Counselor would have to be walking me through each and every one of these tests......Her "team" by the way is only her and some advisors.....2 of them have medical degrees, but none of them are giving advice...other than Jordana.....as far as I can tell........
So today I will call Jordana J and see if she can talk to me about some of the "recommended tests" and conditions....such as:
1. Whole Genome Scanning for Aneurysm Risk (Bogus)
2. Whole Genome Scanning for Asthma Risk (Suspect at best)
3. Whole Genome Scanning for Athletic Performance (Why not just play a sport?)
4. Stool Screening for Colon Cancer @ 575 USD a pop (Uh......family history?)
5. Whole Genome Scanning for Heart attack at 2500 USD a pop
6. Weight loss SNP testing for 424 USD.....(Maybe my pockets will be lighter)
7. SNP testing for lung cancer predisposition (What are THEY smoking?)
I hope you get the picture, these were just a few of the 37 genetic tests this board certified genetic counselor recommended I get.
The Sherpa Says: When the NSGC blasts me for pointing out that genetic counselors were never medically trained AND that they couldn't explain PgX or other medical conditions without a physician involved.....I find this....Jordana J, board certified genetic counselor going out and pushing suspect genetic tests. NSGC better get a hold of their membership. This is precisely my concern.......Does the phrase "Over your ski tips" sound reasonable? This is why physicians and counselors NEED to work together on personalized medicine, not CGCs alone on an island! Like the CGC at AcessDNA.
18 comments:
I went there and they were just giving a breakdown/shopping comparison for what options are available. They clearly say when a test is bogus and not medically relevant.
Really?
http://www.accessdna.com/info/tests.aspx?topic=282
That doesn't seem to be the case here.
And who is the rheumatologist answering this question
http://www.accessdna.com/expert/list.aspx?topic=280
B/C I don't think genetic counselors are experts on arthritis.....
There are some seriously flawed things here. A great idea for sure.....but perhaps it be better staffed by doctors and people who can evaluate the tests....
-Steve
p.s.
show me exactly where they say this test is bogus
http://www.accessdna.com/info/condition.aspx?topic=39
This page should come up first rather than how to order the test, or the personalized genetic test report!
Come on now......do you think that I am fooled that they are the test broker? How about a 10% take on all tests that come through their website???
Good business plan....but without a clinician a horrible way to practice medicine.
-Steve
Quote: "Her "team" by the way is only her and some advisors.....none of them have medical degrees, as far as I can tell."
Two of the advisors are medical doctors.
Saw that and fixed the post. Thanks Anonymous........
BTW, they (The cardiologist and teh geneticist) aren't giving they advice as far as I can tell.......
Yeah, I don't have any idea how the company actually works...as you noted, who gives the information and that stuff.
I do like the business idea though.
I cant figure out how to buy a test from them can you help? They show you tests and prices but i cant figure out how how to buy the test from them
Jordana doesn't appear to be a member of the NSGC. I guess you will have to escort her back to the bunny slope yourself.
Can you prove that Jordanna is not a CGC?
-Steve
@ Anonymous,
See my next post......just when I start thinking that a CEO with a B.S. and obviously no ethics training can run a company.
-Steve
Slippery Slope Ski Patrol:
Nope.
http://abgc.net/english/View.asp?x=1610&mp=1605
"In addition, you acknowledge that we are not engaged in the practice of medicine and that all decisions made using our Website will be the exclusive responsibility of you and your physician or other qualified healthcare professional."
see, its just for fun!!! For those interested in the genetics of beauty and dating and perhaps poor decision making. :)
Quote: "see, its just for fun!!!"
This is what is driving me crazy. Genetic testing SHOULD not be just for fun. I sure hope this "just for fun" thing passes real fast. Knowing if you have a gene mutation for a condition that needs medical treatment is not something that should be done for fun.
Dude! Is it true that they are acting faudulent here???
Woah!!!
-Steve
are you sure she doesn't have another last name?
-Steve
She doesn't show up on the NSGC website.
Its her. http://cat.inist.fr/?aModele=afficheN&cpsidt=17186843
in her summary on the "team" page they mention the above pub.
http://accessdna.com/about.aspx
Jordana J Coelho is her boarded name. She is most definitely one of yours......
http://abgc.net/english/View.asp?x=1610&mp=1605
-Steve
I went on that site to find out more about different test options and I found it really helpful and informative. Plus I think it's a great idea that they have a community forum - this way you can talk about your experience and share info with other users. I don't really understand why you would be worried about who's giving the advice - they have a board certified genetic counselor, two medical doctors and two Ph.D's. And like anonymous says, "They clearly say when a test is bogus and not medically relevant."
Anyway, I think the site will be really helpful to people like me who are looking to understand more about their own genetics...but thanks for getting a conversation started about it! It seems like I'm not the only one who thinks it's a good idea...
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